Since my last post I've not had any more brain surgeries, thank God! I have been in the hospital MANY times though. In my last post I think I had just had my 17th LP? I'm not sure I'm right on this brain fog.... Just a few weeks ago I had my 37th LP. Yep, that is a lot of LPs.
Also since then I recently turned 19, but it hasn't changed anything for me really. Just the number of my age. Also I was approved for SSI, but I only had it for 11 months, then they decided since I went from every 2 weeks in the hospital to every 2 months, I was okay to get a job. REALLY?!? Yeah, that was my life. *Sigh* I have a tough time getting through everyday. The pain sometimes is so intense I had a hard time getting out of the bed. My mom used to be so supportive of me and so empathetic to me. And would realize I couldn't do certain things. But now? Yeah, no I'm expected to do a whole bunch of things everyday, like I don't spend everyday in complete agony. Now she just says, "Well, you don't hurt as bad as I do". Yes; I understand she hurts too. She has arthritis in every joint in her body. I get it, that's painful. But I'm aloud to hurt too. My dad at least understands my struggle and doesn't ask a lot of me. Some days I can do more, others I can only do the bare minimum.
But on a bright note during my MIA time I also became an auntie! This is little Liam. He is one of the only joys in my life. Playing with him always brightens up my days.
And then 15 months later became an auntie for the second time! This is little Malikai.
I think I'm gonna sign off. I need to sleep. I've been lately a big night owl, and I can't sleep till late. So, I need to get off so I can get some sleep.
