Tuesday, November 6, 2012
Interesting Turn Around
So, sorry I've been MIA lately. My last post on Friday Oct. 18th, yeah, SO much happened since then! Well, let's start from the beginning.
That following Sunday, I did NOT feel well at all. I couldn't even get myself to go to church! (And I try my hardest to go every Sunday, even if I don't feel well.) At first I thought I was just coming down with some virus or something. I was extremely tired (Not unusual for me, but still), I had a headache, again I didn't think anything of it because I have a headache everyday. And my throat was extremely raw and hurting.
Later that night I felt my headache get progressively worse. Then I really did NOT feel well. I was very nauseous and the heartbeat in my ears was getting worse. I was really fighting it. I did not want to go to the hospital AGAIN! It wasn't until my sister came into my room and saw me crying on my bed. She asked what was wrong and I told her all that was bothering me. She got a look on her face I've learned to recognize as the "Oh, no she's having another one of her episodes" look. She told me to check my eyes, as when my pressure goes high my eyesight gets really blurry. I checked my eyes and just sighed and flopped my head back on my pillow and started crying again. By my reaction she knew what was going on and ran to tell my parents. Then it was lightening speed quick and before I knew it I was in the car on the way to the hospital again.
So, fast forward to the next morning. I'm sitting (or really laying) in my hospital bed waiting my 17th LP, when in walks my neurosurgeon, (the one who practically wiped his hands of me). I was stunned to say the least when I saw him walk in. I know they notify him every time I'm admitted to the hospital, just so he knows about it, but I didn't think he'd come! (Well, because he stopped visiting me during my many hospital stays awhile ago, when he said, "there's nothing more I can do for her. I put in the shunt that's all I'm doing".) So, imagine my surprise when he not only comes to "visit" me, but says "I have an opening at noon, we can take you down and I can reopen your incisions and hopefully see why the shunt doesn't seem to be working!" WHAT?!?! So, he's suggesting ANOTHER brain surgery!?! And on top of that he doesn't even give me much time to think it over. Seeing as how he moseyed into my room at 10A.M. So, he's saying I only have two hours to process that I'm having brain surgery today? Yeah, I was shocked too!
So, I indeed have brain surgery again. But this time thankfully he didn't shave my whole head, only the part he needed! Thank God! Afterwards I find out that my shunt was indeed not working anymore. The tubing of it was completely blocked. So he unblocked it, added some new crap into my brain and said let's hope this works this time!
So, I go home the next day! (Yes, only in my state do you have BRAIN surgery and go home the next day!) I'm home recovering, then I think, crap I have a job! But I don't want to go to work. Usually in times like when I'm in the hospital I have my sister take over for me. Not this time however. See, she was sick along with me. (Because I did in fact have a virus so I was sick too.) I had my dad call them and say that I was not able to work, because I was sick, and so was my sister. So, needless to say they weren't happy. But what could we do? We were sick. Did they want us to get their kids sick?
So, when we were both not sick, but I was still not up to working. My sister graciously said she'd work for me one of the days to give me more time to recover. So, I text them and tell them the plan. But, they do not reply back. It wasn't till the day before my sister was to work for me that they call and say I'm fired! Yeah, the only job I could get with my condition and I'm fired from it! So, now the only normal thing in my life is gone! Since I was fired and I would never be able to hold down a normal job, I'm in the process of being put on disability. Yes, I'm a teenager and I look and act perfectly normal and I'm being put on disability!
That's what's been happening over here in my stressful life. Hope y'all have a great week!
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